4/17/2011 131 Days Old
April 17th, 2011
On the 131th day in the life of the most beautiful girl in the history of the world the morning began peacefully. Maya slept well last night until her 5:30 feeding. It took Erin quite a while to get her to fall back to sleep, but eventual Maya slept and so did Erin. They both stayed asleep until about 11:00. They needed the rest. It was going to be a busy day.
Maya had many visitors today. Erin has family in from out of town this weekend. Ron, Micki, and Katherine came by with Grandma Kathy and Austin and Eric. It was a beautiful day today, and we were able to spend some time out side with our visitors. Later Grandma Patti and Grandpa Greg came by to see Maya as well.
Maya had a better day today than she has been having. The last week Maya has been congested. It is not clear whether or not her head congestion was because of her heart, but it is clear that it was interfering with her breathing. When she wakes up she has a build up of gunk in her throat and she can’t seem to get her throat clear to breathe. This morning she had a little congestion, but most of the day she breathed a little easier. She still had times where she would hurt and she needed morphine a few times, but she responds really well to the medication. She had long times today when she was awake and not crying. Those times are very special to us. There are days when we think that they may never return, and she is so tired from her fight. But then there are days like today where she shows us what the word strong means. We are grateful for today.
A special thank you to Aunt Krissie for hijacking the blog Friday night. We had a great time out, but it was better to get back home to our girl.