4/11/2011 125 Days Old

On the 125th day in the life of the most beautiful girl in the history of the world the morning did not begin peacefully.  After getting to sleep around midnight Maya woke us up at 2:00. She was hurting and crying and nothing that we did seemed to help her feel better. The numbers on her sat monitor were the scariest yet. Later in the day we would find out that our monitor has been giving us false readings, but we did not know that at the time. We had to give her morphine again. This time it helped, but Maya was still not happy. Eventual at about 5:00 Maya was calmed down enough for us to feel like we could go to sleep. I was able to go back to sleep, and Erin stayed up to give Maya her 5:30 feeding. Afterward Erin attempted to go to work, but returned home quickly.

At 11:30 Maya had a visit from her nurse, our social worker, and our chaplain. This is when we finally found out that Maya’s monitor lead was not fitting correctly on her foot anymore. We had been seeing numbers on her monitor that had us believing that she was barely hanging on, and could not even when resting get her oxygen level up . When our nurse discovered the problem she moved Maya’s lead from her foot to her hand. Shortly after we saw her first good oxygen reading in some time. We are hoping that when we put her back on to her monitor tonight we can get an accurate reading of how she is doing, and we can ease our minds a bit. It has been a long weekend, and all three of us are in need of some rest.

Tomorrow we will be taking Maya to see a Dr. for the first time since she was 2 weeks old. She has developed some congestion in her lungs, and in her throat. We are hoping that our Dr. can do something to help Maya. We have not had much luck with Dr.s. There is a chance that Maya can get a nebulizer treatment that may help her breathe easier. We will have to see. We don’t want to get Maya out of the house only to be disappointed at the Dr.s office, but we have to try.

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