2/4/2011 59 Days Old

On the 59th day in the life of the most beautiful girl in the history of the world the morning began peacefully. I returned to work this morning. I woke up and fed Maya and got to hold her for a bit before I got ready for work. Before the dawn, me and the most beautiful girl in the world, we sat and we snuggled, and then I was off.

When I got home Grandma Patti was holding Maya on the couch. She came over this morning to see Maya and help Erin for a while. Annie and Jaden were over as well. They came over to have a play date with Erin and Maya.  Jaden was born one day after Maya. It was fun to sit them next to each other. He is a cuttie. Apparently before I got home he was quite an active participant in the days activities.

Later in the afternoon it was time to change Maya’s feeding tube. We labored over the task for an hour before we finally got it placed. Maya screamed the entire time. When she gets really irritated she squaks and squirms. Erin thinks she sounds like a teradactyl. I don’t know what a teradactyl sounds like, but I think Erin may be right. Later in the afternoon Maya’s nurse came by for a check up. When we told her the story of the feeding tube plavement and Maya’s wails, she asked ” do you think it was hurting her.” Our response was ” I wouldn’t like it either if you shoved something 28 centimeters up my nose.”

While the nurse was here she went through her normal routine of timing Maya’s breathes and counting her heartbeats. While she was listening to her lungs we noticed that she was listening for a longer time than normal. She told us that she heard a crackle in Maya’s chest. We don’t know if it was moisture in her lungs from her recent ordeal with feeding tube placement, or something more serious. It could be an early warning sign of congestive heart failure. We don’t know but we are watching her closely.

Even if it is a sign of a developing issue, we will still have some more time with her. She is tough and she is resilient. We are always amazed at how well she bounces back. We are hoping that is the case once again. Every day is so special with Maya. Each day counts as many. And in each moment a connection is made. That is what we have and that is what we pray for. more of. More of these little moments, that when added up will make up her life. The life of the most beautiful girl in the history of the world.

The joys baby leggings… these things are awesome.

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