5/2/2011 145 Days Old

May 2nd, 2011

On the 145th day in the life of the most beautiful girl in the history of the world the morning began peacefully. we were both able to get ready and get off to work with out any trouble. Grandma Patti came by to take care of Maya until I got home. Last night Maya got herself into a crank session. She was not happy about something. We are still giving her morphine once or twice a day, and it seems to help. It helped last night but not enough for her to just relax. She was doing some diaper assassination practice. She stayed cranky for 30 to 45 minutes, and cried the whole time. It was near the end of her crying that I realized that she was connected to her monitor and it had not gone off. Her sat had gotten low, but not low enough to make that awful sound that we have come to know. It was then that I realized that she really was a little bit better. I know we have had reports from the nurses and we have seen her awake and more happy recently, but I never really let myself think that her condition had improved very much. We know that she is not better, and she still has struggles ahead, but she is doing just a little bit better now than before. It is a happy confusion that we have found ourselves in. We hope that we stay confused a little longer. That would mean that Maya once again is doing what we thought could not be done. She is the strongest little thing I have ever seen.


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