On the 90th day in the life of the most beautiful girl in the history of the world the morning began peacefully. We were able to skip Maya’s 2:30 feeding and woke up about 5:00. I fixed her food, and got ready for work. Before I left for work Maya had a heart episode. Her heart rate had dropped down really low last night. It had stayed low for about 10 minutes. This morning the same thing happened again. I left for work,but soon realized that I could not be away from my beautiful daughter today. So I came back home. When I got home she was a little cranky and her heart was running a little fast. I was able to get her calmed back down, and we fell asleep on the couch.
We called carousel and scheduled a nurses visit to figure out what was going on. We talked about all of the treatment options and decide that what we were already doing is still the best thing to do. She listened to Maya’s lungs. The right side sounded better today, but the left side may be being interfered with by her enlarged heart. She thinks that Maya’s heart rate fluctuations are something that Maya could live with for a while. It is still a scary thing to see, but she seems to cope with it, and has done better throughout the day.
Tonight Grandma Kathy is visiting Maya. Morgan is also over. We are just sitting around laughing at Mo. She is some what entertaining. We are hoping for a better night with Maya tonight. And I hope that I can make it to work tomorrow.Uncategorized | Comment (0)